There is Always a Choice

TW: self-harm and suicide

I wrote this in my hospital journal towards the end of my stay. A few days ago, I published a post about self-compassion. The two seem to go together, in my mind.

drawing of landscape with tree and river and words about self-compassionThere is always a choice. Two therapists have told me this independently. It took a little while for the meaning to sink in after the first therapist said it. I had gone a few weeks without self-harm at that point, and I still felt utterly controlled by it. The question of whether to do it or not didn’t seem like a choice; it seemed like an inevitability. Over time, the less trapped by it I felt, and the more sense that statement made. Although the choice of whether to self-harm might have been stacked in favor of doing it, the choice to take steps to change that was still mine.

I relapsed and eventually ended up here, in the hospital. On the surface, I’m likely to view all of that as a failure. However, I didn’t make the wrong choice. I experienced the symptoms of wanting to self-harm and having suicidal thoughts. I made the choice to be honest and to go to the hospital. I’m making choices every day to participate in groups and to work towards stability.

Was cutting a choice? Yes, but it’s about more than that. It’s about larger choices. When my disorder makes resisting those urges and thoughts too difficult, agency over my life as a whole is still mine. I can decide to work towards taking back control in all areas, however slowly I have to do that. It’s about the choices I make to be honest with my loved ones, to go to therapy, and to take my medication, that will affect my recovery from an illness that makes me want to hurt myself, that makes me want to disappear, that tells me that I don’t matter.

I do matter. I choose to work towards self-love.

There is always a choice.

Love,

Your brain

Acceptance, Self-Compassion, and Growth

The other day, my therapist gave me a handout on self-compassion. My “assignment” is to read through it and make some notes on what stands out to me. Since she reads my blog, (Hi, J!) why not expand my notes into an entire post?

A Definition of Self-Compassion

Self-compassion has to do with accepting that we are not infallible and treating ourselves gently when we’re suffering. Just like you’d extend understanding and compassionate support to someone else, we can strive to do the same for ourselves. As humans, we’re going to make mistakes; our imperfections are not only part of what make us unique, but their existence is also a common element shared among all humans. The handout encourages readers to stop fighting against the reality that we are imperfect beings.

Here’s my initial reaction to that bit of advice: but if I stop fighting it, I’ll stop improving. 

Growth

drawing of woman surrounded by plant growth

I worry that if I stop fighting the reality that I’m going to make mistakes, I’ll end up stagnating. If you also hold this belief, I wonder if we can change it by convincing ourselves that the components of success don’t necessarily include criticism and harsh judgment. You can like yourself and still be motivated to grow and improve. (This is what the Dialectics in DBT is all about; two seemingly opposed things can be valid at the same time. It’s about finding the middle ground.) Not to mention, you don’t need to beat yourself up for your mistakes in order to learn from them.

Acceptance vs. Resignation

At the heart of it lies another DBT concept, the difference between acceptance and resignation. Acceptance is the ability to recognize and come to terms with the reality of a situation. It leaves room for you to change it. Resignation doesn’t. When you’re resigned to something, it’s like putting blinders on. You see the reality of what’s in front of you, but not the opportunities to your left and right. With acceptance, you can understand that something is the way it is and still take steps to change it.

Depression’s Symptoms

Here’s where I run into trouble. Depression comes with behavioral symptoms that can get in the way of my productivity. When I sleep too much, for example, it somehow feels easier to be hard on myself than to accept that my illness causes these symptoms. Why? Probably because it gives me a sense of control. If I take responsibility for things that are out of my control, I don’t have to face that they are, in fact, out of my control. It scares me to feel like a victim of my illness. I’d rather be hard on myself for something that’s not my fault than relinquish my (false) sense of control over my actions. I think the key issue is that I’m not distinguishing between acceptance and resignation. I can accept that depression causes me to experience symptoms. If I accept that (not resign myself to it), then there are actions I can take to combat those symptoms, and practicing self-compassion will be easier.

Keep in mind I said “easier“. I’ll be honest, self-compassion is something I’m really struggling with. How can I hold myself accountable for working to get better without being judgmental when it’s not going to plan? It seems like a delicate balance, but my current strategy is not serving me in the way that I’d like. I guess it’s time to invest in a tightrope.

Are there times when you struggle with self-compassion? How do you remedy it? Share your tips in the comments!

Medicine

medicineIt’s nothing to be ashamed of I tell myself twice daily. What day is it? They all blend together. I open the third compartment, pour the pills into my palm, wait for a moment. Maybe this day will be the day. Maybe if I give the medicine a moment of silence; infuse it with my desperation before I let it fall down the dark well of my esophagus.

How many have I tried? Not enough that all hope is lost. How many have I tried? Enough that they call it “treatment resistant” depression. I call it drowning by degrees. Later, I open the third compartment, pour the pills into my palm, and wait a moment.

It’s nothing to be ashamed of.

Love,

Your brain

green-vine-climbing-white-wall

How I Learned to Advocate for Myself

I’ve been enjoying all of the content online for Mental Health Awareness Month, and I thought I’d contribute my own story. Here’s my own experience of why advocating for yourself is important.

I have severe psoriasis, an autoimmune skin condition that makes itchy, flaky plaques where my skin cells regenerate too quickly. During my recent hospitalization (for severe depression), I let my doctors know about this in a brief, it’s-not-that-relevant-but-you-asked kind of way. When the psychiatrist asked if I had any physical conditions, I informed him of my psoriasis.

A few days later, I was meeting with my social worker to discuss my treatment plan. Under “diagnoses,” Major Depressive Disorder and psychosis were listed. Before I even said anything, my social worker quickly brushed it off and said, “Don’t worry too much about the psychosis- it might just be that you were confused when you came in.”

Now, I’m the kind of person who will eat the wrong food at a restaurant rather than speak up and point out a mistake. I’m the kind of person who willingly takes the middle seat on an airplane because my neighbor explains that she has to pee a lot. Seriously. I am not assertive.

However, diagnoses are a whole ‘nother bucket of fish. When I saw that on my treatment plan and heard my social worker minimize it, I made it clear that I was confused by it and wrote my concern in the questions portion of the form. The next time I saw the psychiatrist, I steeled myself in preparation to ask about the mysterious psychosis that I definitely didn’t have. Before I could bring it up, he sat down, sighed, and said, “It turns out that they couldn’t read my handwriting and thought I wrote ‘psychosis’ when really, I wrote ‘psoriasis.’ It’s all fixed, now.”

I laughed about it at visiting hour that night and for many nights after. Really, we’re still laughing about it. We’re getting some serious mileage out of that one.

The important thing is that I spoke up for myself and that it got remedied. I almost had an incorrect diagnosis which could have caused more confusion down the line. So, speak up! If something doesn’t look right or feel right, let your doctor know. They’re people too, and sometimes mistakes happen.

Also, handwriting is more important than you might think.

peter-cohen-quote-wellness-and-self-care

Levels of Mental Health Care

In light of my recent posts, I thought it might be useful to elaborate on the levels of mental health care you can find in a hospital setting (at least in the US). What are the differences between them, and what can you expect from each?

Inpatient Treatment

Entering a hospital as an inpatient for mental health care can be incredibly nerve-wracking. If you don’t know what to expect, the experience is overwhelming. The important thing to remember is that the system is designed to keep you and the other patients safe.

In an inpatient setting, you sleep at the hospital and spend your days on the unit. You might have a roommate; they’re probably just as overwhelmed as you are. The staff will likely elaborate on the expectations for patients, but you may be expected to spend the majority of your time in a common area, interacting with other patients and staff. Your nurses and doctors will want to see that you’re participating in group therapy, willingly spending time outside of your room, and eating meals with the unit. You’ll meet with your doctor and a social worker, and have a chance to discuss your treatment goals and any concerns you have. Different hospitals have different timeframes for this; you could meet with your doctor as often as every day, although it may happen less frequently.

Before you’re discharged, the staff will probably want to be sure that you have a support system, safety plan, and aftercare set up. Continuing mental health care might look like a partial hospitalization program, intensive outpatient program, or outpatient therapy with your own mental health counselor.

Partial Hospitalization Program (PHP)

The next level down from inpatient care is a partial hospitalization program. In a PHP, patients typically attend therapy for most of the day, sleep at home, then return for the next day of programming. For example, the PHP I did was from 9 am to 3 pm, Monday through Friday for ten days.

Programming usually focuses on teaching skills and information you can use to manage your illness. The PHP I was in took content mainly from DBT, although we also touched on ACT and CBT. You’ll meet with a psychiatrist and your case manager, who is usually one of the therapists who leads group discussions and teaches content. Your case manager will probably set up a treatment plan with you, and meet with you periodically to check in on your progress.

Many people come to a PHP through inpatient hospitalization. After spending time isolated from your normal, day-to-day life, it can be overwhelming to be tossed back into it. A PHP can serve as a helpful step-down to ease you back into your routine. Other people come straight from their outpatient treatment. They may not need the level of mental health care you get with inpatient treatment, but the support of a PHP can give them the structure they need to stay safe.

Intensive Outpatient Program (IOP)

In the same way that a PHP offers a transition from inpatient back into your normal life, an IOP does the same. It’s the next level down from a PHP, but is still, well, intensive. An IOP is similar to a PHP in the content that’s taught, but you meet less frequently and for a shorter amount of time each session, but for a longer overall duration. Many IOPs meet three times per week for three hours. The program might run for as many as eight weeks. The IOP at the hospital where I did my partial hospitalization had a more independent treatment; you didn’t get to meet with a psychiatrist or a case manager. That meant you would need to have outside medication management set up for your time in the IOP.

Many people go straight from inpatient treatment to an IOP, although others may need the structure of a PHP. Some people continue on from partial hospitalization to intensive outpatient, but sometimes that’s not feasible with work or family obligations. I decided not to do an IOP, but rather to return to my regular schedule and leave IOP as an option should I need more intensive mental health care down the road. It’s all very individual, and which program you choose depends on your specific needs and constraints.

prairie-with-blue-sky-and-clouds

What I Gained in Partial Hospitalization

Two or three days into my partial hospitalization program, it became clear to me that my peers were seeing positive results. At check-in, those closest to leaving would report feeling “good”, or “light”- two sensations that are unfamiliar to my depressed brain. I was glad that they were feeling better, and initially, it gave me a glimmer of hope for myself.

As the days passed, that hope dimmed; I wasn’t feeling much better at all. In fact, as my last day approached, I started feeling lower and lower. My thoughts about self-harm came back in full force, and when I tried to use the skills we’d been taught to combat them, I was unsuccessful. Morning check-in was even more excruciating than usual because I had to admit that I wasn’t doing well. The people who had come before me had felt better, so what was I doing wrong?

For one thing, I wasn’t doing anything “wrong”. The psychiatrist and both therapists for the program all agreed that the root cause of my depression is chemical. This doesn’t mean that coping skills are useless. They can help keep me safe and offer healthier alternatives to my go-to, maladaptive coping mechanisms. Over time, I can retrain my brain to help me get out of negative thought patterns or habits. However, coping skills are unlikely to do much to address the causative problem.

Secondly, there is no right pace for recovery. Comparing myself to others was only making me feel worse. That said, it’s only natural that we look to others to find out what to expect when we’re in an unfamiliar situation. I wish I had been able to temper my expectations when comparing myself to others in partial hospitalization.

Just because I didn’t leave partial walking on air doesn’t mean I “failed”. I still got a lot out of the experience.


Connection

Similar to my experience of being an inpatient at a mental hospital, one of the most valuable takeaways for me was the sense of connection I had with other patients. Hearing about other people’s perspectives on a shared experience helped me gain insight into my own thoughts and behaviors. Plus, it feels good to talk to people who understand your suffering and can empathize. I definitely came away from the ten-day program feeling less alone.

A sense of my own value

The first few days of my participation in the PHP, I was there for my family. I was there because other people wanted me to be, and I was willing to commit my time to a program like that in order to ease my family’s fears. A few days ago, though, I realized that I felt more like I was there for myself. It was a subtle shift, but it feels like a big step.

Acceptance

Throughout my inpatient hospitalization and partial hospitalization, I had several moments that stopped me in my tracks. The fact that I was at that level of care for my mental illness seemed surreal, and I couldn’t wrap my mind around the situation. I think that I have a better grasp on my symptoms and what I need to do to keep them under control. I also have a sense of acceptance that once I feel better, I’ll still need to manage my illness; I won’t be able to push returning symptoms under the rug. That’s how I ended up in the hospital.

Greater understanding of my patterns and behaviors

While the skills I learned may not address the root of my depression, they certainly help me shift my behavior towards healthy responses and actions. Perhaps the biggest behavioral takeaway for me is greater awareness of how I withdraw, isolate, and avoid addressing the issue of my depression with my loved ones.

Patience

No, I didn’t leave partial hospitalization feeling like my peers who had left before me. Everyone goes at their own pace, and everyone has unique circumstances and factors involved in their symptoms. All we can do is go day by day.

My Secret Fear about Depression

I have a secret fear that maybe this is what life is like for everyone. Maybe I’m expecting too much. Maybe other people can cope with life’s stressors better than I can. Maybe I should try harder. Maybe my depression is fake.

Spoiler alert: it’s not.

Part of what makes depression so terrible is that, by its very nature, it keeps you from getting help. It tells you you’re worthless, it makes you ashamed, and it robs you of motivation and energy. My depression tells me that I’m ungrateful and burdensome and that I should keep quiet about the things I’m struggling with. Well, y’know what? I’m sick of taking orders from The Lump.

I’m going to PHP group therapy, individual therapy, and I’m talking to my family and friends about my illness. I’ve even told a few acquaintances about my hospitalization. And, guess what? Everyone has responded with compassion and support. Not one person has said “You’re faking it. Just stop being sad.” The only time I ever hear that phrase is when it’s inside my own mind.

It’s time I show myself a little of the understanding and reassurance I receive from others. After all, I have a biochemical imbalance in my brain. It’s not my fault.